Like you, many families are interested in the straightforward findings of our research and how it affects their day-to-day lives. Here are the key takeaways of our recent studies and what’s happening next.
Research Takeaways
Beside Notes: Giving Families Access to Clinical Notes during Hospitalization
Families in this study received a tablet that allowed them to read the daily ‘notes’ written by their child’s doctors during their hospital stay. Notes included the admission and daily progress notes. What did we …
ReSET
This set of projects studies the experiences of families and caregivers of children with medical complexity from across the Midwest throughout the COVID-19 pandemic, testing, and school safety. Please see our full team webpage here. …
RE-PACT
This was a study that looked at an intervention named “RE-PACT” for kids with severe cerebral palsy. RE-PACT stands for Respiratory Exacerbation Plan for Action and Care Transitions. The intervention has three main activities: action …
Meds@HOME App Testing
In this upcoming study, over 150 families and other caregivers for children with complex medical needs seen at UW Health will be enrolled into a clinical trial where participants will use the Meds@HOME app for …
Meds@HOME App Design
Growing from our earlier @HOME app design, in this study a group of caregivers of children in the UW Pediatric Complex Care Program met several times over the span of 6 months to re-design the …
@HOME App Testing
In the second study, 30 parents of children in the UW Complex Care Program used the @HOME app for a month. We are almost done and will report back soon.
@Home App Design
In the first study, a group of parents of children in the UW Complex Care Program met several times to design a prototype for an app to help with daily and g-tube care. The prototype …
ACTIV
In this study, 75 parents of children in Complex Care Programs at the University of Wisconsin, Boston Children’s and UCLA, texted us every two weeks for three months. Parents reported that the texting was simple. …
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