THRIvE

The THRIve study wants to understand how the group of people who help care for a child can impact a child’s health and well-being.

Family LENS

Family LENS (Lived Experience in Scholarship for Children with Medical Complexity) is both a research study and educational curriculum for medical and allied health learners. Family LENS was inspired families in the Madison Pediatric Complex …

ReSET

This set of projects studies the experiences of families and caregivers of children with medical complexity from across the Midwest throughout the COVID-19 pandemic, testing, and school safety. Please see our full team webpage here. …

RE-PACT

This was a study that looked at an intervention named “RE-PACT” for kids with severe cerebral palsy. RE-PACT stands for Respiratory Exacerbation Plan for Action and Care Transitions. The intervention has three main activities: action …

Meds@HOME App Testing

In this upcoming study, over 150 families and other caregivers for children with complex medical needs seen at UW Health will be enrolled into a clinical trial where participants will use the Meds@HOME app for …

Meds@HOME App Design

Growing from our earlier @HOME app design, in this study a group of caregivers of children in the UW Pediatric Complex Care Program met several times over the span of 6 months to re-design the …

@Home App Design

In the first study, a group of parents of children in the UW Complex Care Program met several times to design a prototype for an app to help with daily and g-tube care. The prototype …