Research Studies

Family LENS (Lived Experience in Scholarship for Children with Medical Complexity) is both a research study and educational curriculum for medical and allied health learners. Family LENS was inspired families in the Madison Pediatric Complex …

Families in this study received a tablet that allowed them to read the daily ‘notes’ written by their child’s doctors during their hospital stay. Notes included the admission and daily progress notes. What did we …

The Family CIRCLE research study is learning from 700 families of children with special healthcare needs

This set of projects studies the experiences of families and caregivers of children with medical complexity from across the Midwest throughout the COVID-19 pandemic, testing, and school safety. Please see our full team webpage here. …

This was a study that looked at an intervention named “RE-PACT” for kids with severe cerebral palsy. RE-PACT stands for Respiratory Exacerbation Plan for Action and Care Transitions. The intervention has three main activities: action …

In this upcoming study, over 150 families and other caregivers for children with complex medical needs seen at UW Health will be enrolled into a clinical trial where participants will use the Meds@HOME app for …

Growing from our earlier @HOME app design, in this study a group of caregivers of children in the UW Pediatric Complex Care Program met several times over the span of 6 months to re-design the …

In the second study, 30 parents of children in the UW Complex Care Program used the @HOME app for a month. We are almost done and will report back soon.

In the first study, a group of parents of children in the UW Complex Care Program met several times to design a prototype for an app to help with daily and g-tube care. The prototype …

In this study, 75 parents of children in Complex Care Programs at the University of Wisconsin, Boston Children’s and UCLA, texted us every two weeks for three months. Parents reported that the texting was simple. …